SOCIEDAD
ESPAÑOLA E INTERNACIONAL DE TANATOLOGÍA
ENLACES
LA MUERTE
MUERTE Y CULTURA
PROCESO DE MUERTE
DUELO
GRUPOS DE APOYO, PÉRDIDA Y DUELO
MUERTE FÍSICA
ASPECTOS SOCIALES, JURÍDICOS Y ÉTICOS DE LA MUERTE
VIDA DESPUÉS DE LA MUERTE
RELACIÓN DE AYUDA
LOS CUIDADOS PALIATIVOS. CUIDADOS AL FINAL DE LA VIDA
EDUCACIÓN EN LA MUERTE
REVISTAS
Project on Death in America - A program to understand and transform the culture and experience of dying and bereavement through initiatives in research, scholarship, the humanities, and the arts, and to foster innovations in the provision of care, public education, professional education, and public policy.
Tuskegee University National Center for Bioethics in Research & Health Care - The nation's first bioethics center is devoted to engaging the sciences, humanities, law and religious faiths in exploring moral issues involving research and medical treatment of African Americans and other underserved people. The Center provides leadership in cultural diversity and death and dying. 1209 Chambliss Street, Tuskegee Institute. Tuskegee, AL 36088. (334)-724-4612.
ACCESS to End-of-Life Care: A Community Initiative - Formed in 1997 by a group of experienced hospice nurses, social workers and administrators, this advocacy group provides education about death, dying and grieving. P.O. Box 460478. San Francisco, CA 94146-0478
Assuring Cultural Competence in Health Care - The Health and Human Services Office of Minority Health has published national standards on culturally and linguistically appropriate services (CLAS) in health care, available online. OMH Resource Center. P.O. Box 37337. Washington, DC 20013-7337. 1-800-444-6472
Growth House Inc. - Provides background and health agency referral services with a strong focus on diversity, including a section on gay and lesbian issues.
HIV In Site - The University of California San Francisco offers comprehensive information on issues surrounding HIV/AIDS.
Empresa Mixta de Servicios Funerarios de Madrid, S.A. - Servicios, instalaciones, taller floral, tanatorios y cementerios.
Asociación de Amigos del Cementerio de San Miguel - Grupo que ofrece planos, un resumen histórico y un listado de personajes enterrados en el cementerio.
Funerals.org - Información personal en torno a funerales, embalsamamiento, donación de órganos, etc. Página en inglés.
Arte del bien morir - Sobre como ayudar a otros a bien morir. J. Montoya Carrasquilla.
Hospice of Martín & St. Lucie, Inc.
Dying.about.com - Página que da información general sobre temas relativos a la muerte y los moribundos.
Fundación Apoyo y Presencia
¿Quiénes somos?
Fundación Apoyo y Presencia, es una ONG dedicada a promover la asistencia psicológica y emocional a personas y familias en situaciones vitales críticas y fomentar la visión integral de los Cuidados Paliativos en Venezuela.
¿Etapas Vitales Críticas?
Son aquellos momentos relacionados con alto riesgo vital por cambios en condiciones de salud, accidentes, así como también fin de relaciones, ausencias o pérdidas.
Sostenemos que el acompañamiento emocional especializado en estas circunstancias, puede re-orientar muchos aspectos de nuestras vidas, dándoles más sentido y llenándonos de oportunidades de transformación.
¿Qué hacemos?
Servicio voluntario de apoyo emocional en la Unidad de Cuidados Paliativos del Instituto Oncológico Luis Razzetti.
Talleres: Manejo de las Ausencias /Cuidando al Cuidador.
Formación de voluntarios para acompañamiento emocional.
Sesiones de terapia individual y grupos de auto-apoyo familiar.
¿Quieres saber más, necesitas apoyo o quieres dar tu aporte?
Contáctanos por los teléfonos:
(58)-212-3711445/3727179 y (58)-414-2554263
Email: apoyoypresencia@hotmail.com
Web: www.apoyoypresencia.orgSaberMorir.com. Apuntes para humanizar la despedida.
Vivir la pérdida. Ayuda en el duelo por la muerte de un ser querido.
www.duelarte.com.ar - Objetivos: Acompañar y asistir a personas en duelo. Ayudar a quienes ayudan, brindando material de apoyo y orientacion para quienes acompañan a personas en duelo. Educación. Transmitir información sobre el duelo a la sociedad en general y profesionales de diversas áreas.
www.duelum.com.ar y www.muerteseresqueridos.com.ar
Duelum es un centro dedicado a la recuperación emocional de la pérdida. Es único en Argentina. Está dirigido por la Licenciada en Psicología, Diana Liberman.El duelo. Sobre el cómo ayudarnos y ayudar a otros a enfrentar la muerte de un ser querido - Web de J. Montoya Carrasquilla.
GriefNet: bereavement, grief, death and dying resources - Este es reflejo inglés que se basa en la Organización Estadounidense (pero internacional) con listas de servicios (mainly in USA), información sobre el duelo, y un boletín de anuncios con la información sobre eventos y grupos de apoyo mutuo y nuevos grupos.
Growth House - Bereavement, hospice information, and end of life issues - Un proyecto de trabajo en San Francisco basado en el duelo, los puntos de vista al final de la vida y los cuidados al paciente en situación terminal con una bien organizada, considerable y revisión de nexos.
Bereavement Research Network - Un Considerable trabajo norteamericano enfocado de modo académico y aprovechable. Tiene una sección considerable que relaciona con Recursos de Congoja de la persona -Men's Grief Resources - Incluye trabajos de investigación.
AARP Grief and Loss Programs - Offers a variety of programs in which volunteers reach out to widows. 601 E Street, NW. Washington, DC 20049. (202) 434-2260.
Hospice Foundation of America - Provides leadership in the development and application of hospice and its philosophy of care with the goal of enhancing the American health care system and the role of hospice within it. Offers information to professionals and families about caregiving, terminal illness, loss and bereavement. 2001 S Street, NW, Suite 300. Washington, DC 20009(202) 638-5419 or 1-800-854-3402.
Parents Without Partners - Offers support, information and resources for single parents. 1650 S. Dixie Highway, Suite 510. Boca Raton, FL 33432. (561) 391-8833.
ElderHope, LLC - Offers online support, forums, seminars, classes, and bereavement materials P.O. Box 940822. Plano, TX 75094-0822 .(972) 768-8553.
Society of Military Widows/National Association of Uniformed Services, Inc. Offers information and support to military widows. 5535 Hempstead Way Springfield, VA 22151, (703) 750-1342.
Kearl's Guide to Sociological Thanatology - Lugar recomendado aunque no académico pero una interfase accesible. Un lugar en el que se apunta a una mayor comprensión del duelo una perspectiva sociológica.
WidowNet - Un lugar para el duelo "por y para viudas y viudos". Un sitio interesante con muchos nexos buenos. Sin embargo, no es siempre fácil de encontrar qué usted quiere si no lo categoriza bien.
Grupo Renecar - Grupo de ayuda mutua para padres que perdieron sus hijos por fallecimiento. Hay más de 120 grupos en Argentina, Chile, Uruguay y Paraguay.
Solace House - Offers a supportive and understanding environment where children and their families can mourn the death of a loved one with the assistance of volunteer facilitators, staff, and other families in similar situations. The Solace House website offers many of these resources on-line.
Bereavement and Hospice Support Netline - Provides access to bereavement support groups throughout the country, with eleven different bereavement group types.
Loss, grief, and bereavement - National Cancer Institute.
Pérdida, pena y pesar - National Cancer Institute.
Grief support after the death of a child - The Compassionate friends.
How to help your child deal with death - The Nemours Foundation.
Somebody in my friend's family died. What should I do? - The Nemours Foundation.
Loss - Bereavement and grief - National Mental Helth Association.
Fact Sheet: Grief and Loss - Family Caregiver Alliance.
Grieving - American College of Physicians.
INFANT LOSS / MISCARRIAGE SITES:
Always Loved ~ Never Forgotten ~ Forever Missed~. Is actually a "Yahoo Group" that has recently added a newsletter For Grieving Parents.The Newsletters come out every Sunday Evening with Greiving or Memorial sites/links, Poems, and anything else that the members and visitors send in.AMEND (Aiding Mothers Enduring Neonatal Death) An organization that provides counseling free of charge to parents experiencing the death of an infant through miscarriage, stillbirth, or neonatal death. This is the website for the National Organization and and explains their programs, their resources, and volunteer opportunities.
AMEND (Aiding Mothers Enduring Neonatal Death) of Tampa Bay. A Support group for Pregnancy Loss site tells of their program and where to get further information on their monthly meetings.
Anencephaly Jessicas Journey. The personal site with information and inspiration. Especially check out the "Heavenly Inspirations" for uplifting scripture, prayers and poems!Angel Babies - Forever Loved is a site that includes several items of interest including several articles of interest to parents who are grieving. Includes a memorial page.
Angel Babies in Heaven, Pregnancy Loss Memorials Offers hand painted stepping stone baby loss memorials as special keepsakes for bereaving parents. Site also offers parental support and their own personal story of their stillborn daughter.
A Heartbreaking Choice. For parents who have interrupted a wanted pregnancy following poor prenatal diagnosis. Includes resource list, remembrance garden, poetry, other educational information. You can also register to be included in their chatroom. Also includes over 40 local support groups for parents who have interrupted a pregnancy.
A Secret Grief - Miscarriage Support includes a forum, a monthly calendar and offers support to anyone who has
lost a child or a pregnancy.American SIDS Institute includes information on research, a memory page, links to other SIDS sites and bereavement services.
Arizona SIDS Alliance has lots of information for anyone seeking more information on SIDS. Includes resources for both families and professionals, an on-line version of their newsletter, a Memorial Page, and merchandise. A Spanish version of the site is also available under "additional information."
Baby Bunny Memorial Site is a wonderful and creative memorial site for infants who have died from miscarriage, stillbirth or SIDS. The remembrances are given little baby bunny animations and parents are allowed to express themselves through prose or poetry. The site also includes a Sad Mommy Adoption project and several other projects coordinated by fellow sad mommies.
Babyloss Information, support, forums, stories and dedications for women and their partners who have experienced the devastating loss of a baby.
Bereaved Families of Ontario updated regularly, and includes over 300 links to other web sites on the topic of dealing with all types of grief. And, it's frequently updated!
Bereaved Moms A Christian ministry of stories, memorial pages, and email group for those who have experienced miscarriage, stillbirth or early infant death.
Bereaved Parents of the USA lists chapter locations and info, information for the newly bereaved, and now has all of their newsletters online back to the fall of 1999.
Bonnie Babes Foundation: A nonprofit organization in Australia providing counseling services and training.
Born Angels is a site for grieving parents who have lost a baby at any stage of their pregnancy; ectopic pregnancy, miscarriage, or stillbirth...and for their family and friends.
Born Still offers email support, poetry , links, and free greeting cards.
Born Too Soon is a marvelous site especially for women who have lost a baby during pregnancy or birth at any time of their pregnancy. The site discusses in depth the emotional side of pregnancy loss and there are special pages for still birth, ending a pregnancy due to abnormalities, children and giref and a page for relatives/friends on helping someone with pregnancy loss. Also offers free remembrance certificates for anyone who contacts my site and pages for dedications.
C. Elizabeth Carney's personal site related to her miscarriage and her "12 Truths". Also includes "A Mother's Prayer / Affirmation After Miscarriage."
Carrying To Term Pages is an online how-to guide for carrying a pregnancy to term after diagnosis of a condition fatal to the baby. The site includes birth plans for terminally ill babies, memorial ideas, funeral planning, and emotional support.
The Center for Infant & Child Loss works with Maryland families and communities facing the sudden unexpected death of their infant or child as they learn to live with their loss. The Center is committed to increasing the understanding of Sudden Infant Death Syndrome (SIDS) and other child deaths, risk reduction practices, grief, and compassionate intervention.
Center for Loss in Multiple Births (CLIMB) now has a web page introducing their services. You can e-mail them to receive a free copy of their newsletter.
Centering Corporation is one of the largest distributors of all grief materials, including infant loss. They now offer their catalog of materials online.
Christian Miscarriage Support An international Christian ministry for anyone who has been affected by the loss of a child due to miscarriage. This is done by: sharing the stories of our losses, praying for each other, giving encouragement, lending a caring shoulder to lean on, and growing friendships.
Compassion Books, 477 Hannah Branch Rd., Burnsville, NC 28714, (828) 675-5909; Fax: (828) 675-9687. Over 400 resources to help children and adults through serious illness, death, loss, grief and bereavement. Print catalog available by request.
Compassionate Friends provides locations of all of their 575 chapters in the U.S. and links to at least 29 different chapter homepages.
Coping with the Emotional Aspects of Pregnancy Loss An excellent primary guide for parents who have recently experienced the death of a child through miscarriage, stillbirth or other perinatal loss.
C.P.L.S. (Christian Pregnancy Loss Support) is a site dedicated to a Christian perspective on the loss of an infant. It includes a shared stories, a suggested reading list, inspirational poetry, and links to other sites with a Christian emphasis. You can also leave a prayer request, or "subscribe" and post to the CPLS site. Their email address is cpls@iname.com.
Dedication Page to Tyler Branden Lotz is a wonderful personal site that incorporates their own story with pictures, poetry, links, and a place where others can leave a memorial on the Memorial Wall.
Ectopic Pregnancy A compassionate information resource compiling facts, stories, poetry and other items of interest to those who have experienced an ectopic pregnancy.
Ectopic Pregnancy. A one-page explanation of the things to look for in ectopic pregnancies.
Elizabeth A. Pector, M.D. has set up a page of poetry and prose focusing on multiple birth loss. From here you can also connect to her multiple birth loss resources page.
Empty-Cradle.com is dedicated to honor all the babies that have left this world before we were ready for them to. Whether you are the mom, dad, grand-parent, aunt, uncle, sibling or friend, you are welcome to put up your FREE memorial for your little angel. Share your story, pictures, poems, or anything else you want to share about your baby. Just abide by the Terms of Service.
Frequently Asked Questions about Miscarriage, a site maintained by Laura Brook. Among many other things it includes words of encouragement, links, info on molar pregnancies and how long to wait before trying again.
Friends Supporting Parents is a support group in the Detroit area for parents who have lost children through stillbirth, miscarriage and neonatal death. Services include meetings, one-on-one support, a newsletter and other programs.
Foundation Esperanza, Mexico, was developed by a group of mothers with one or more perinatal and neonatal losses and offers a large extensive support site in Spanish.
Glory Babies... of the Children are a Gift Foundation offers personal stories, articles, a newletter, prayers, poems, memorials, resources & links.
Grief Journals and Keepsake Box, are beautifully crafted by artist Lisa Thun. The Journals have handmade covers with embedded herbs, and the box is made of wood with cedar lining. These are heirloom items.
HAND (Helping After Neontal Death) Founded in 1981 to help parents, their families and their healthcare providers cope with the loss of a baby before, during, or after birth. It is aa resource network of parents, professionals, and supportive volunteers that offers a variety of services throughout Northern California and the Central Valley.
H.A.N.D. (Houston's Aid in Neonatal Death). Writings, resources, links and information on support meetings in the Houstan area.
HAND of the Peninsula. This web site by a local chapter of HAND (Helping After Neonatal Death) offers information on their resources, their programs, their support groups. Includes "telephone crisis" support.
Hannah's Prayer, Christian emphasis, including infertility or the loss of a child at any time from conception through early infancy. Info on their network of local care/support chapters through the US, "live chat" room, and a penpal connection area. They also have a newsletter, Hannah To Hannah.
Healing Hearts for Bereaved Parents offers stories, articles, prayers and a newsletter as well as links and resource list for parents who have lost infants or toddlers.
H.E.A.R.T.S. (Helping Empty Arms Recover Through Sharing) is a Baby Loss Support Program for anyone who has been touched by the loss of a baby during Pregnancy or shortly after Birth. One-to-One Support, Group Meetings, Resource Library, Monthly Newsletter, Website and a Pregnancy After Loss Group. Created in 1996 by two mothers who discovered a lack of support in their own community after the losses of their precious babies. Located in Sherwood Park, Alberta, Canada but open to all.
Honored Babies for those who have experienced miscarriage, stillbirth, neonatal death, and/or pregnancy termination. You'll find an online Memorial, Support Email Lists (separate lists for Mothers and Grandmothers), a comprehensive Resource Center, and Keepsakes.
Hygeia: Online Journal for Pregnancy and Neonatal Loss. Constructed by a certified OB-Gyn, it includes: monthly journal; references; resource area; poetry; visitor contribution area.
In Loving Memory of Matthew Kristopher Mosquera. Another personal website that gives you a very good idea of how nicely a remembrance site can be.
Jason's Page: A Tribute to My Son is constructed by a father in tribute to his son who lived three days. A wonderful perspective on father's grief. Includes links and also an article on a man's perspective on a subsequent pregnancy.
Ladies in Waiting is an International Network for Christian women who deal with the issues of infertility or miscarriage.
Letters To Sarah: "Surviving Stillbirth," is the journal of Jennifer Goins-Caufman during the year following the stillbirth of her daughter. Also includes poetry.
Lilly's Rose Garden is a memorial book to remember little angels.
Little Ones Lost includes information on miscarriage, stillbirth, ectopic pregnancy and infertility. Includes chat and guestbook as well as links section.
Loss in a Multiple Pregnancy: Information and Support is the homepage of Lynne Schulz, Co-ordinator of the Murraylands Lutheran Stillborn Infant Support Service in Murray Bridge, South Australia. You will find a dedication page for multiples, sharing pages, poetry, research papers, and links.
Lost Child Support Group, a peer led support group located in Central Ohio who post their bi-monthly newsletter and schedule of events, online.
Love Never Dies -- A Tribute to Geordi is a personal site dedicated to an 18-month old who died after surgery to correct a congenital heart defect. Includes support information at the very bottom of the page, including how her parents coped with her death. From this site you can link to the "Congenital Heart Disease Ring."
Maitland Support Group Miscarriage-Stillbirth & Neo-Natal Deaths in NSW - Australia presents this website Personal Story with resources, Candle of Light Room, Listen to Me, Recommended Reading, Coping with Holidays & Anniversaries
Organization& Internet Support, Wall Of Hope, Understanding Grief, and Resolutions for Bereaved Parents.Maternal Grief page of obgyn.net is devoted to comfort the sorrow of hearts grieving the loss of babies through infertility, miscarriage, stillbirth, neonatal death, and sudden infant death, and to offer ongoing support.
M.E.N.D., support with a Christian emphasis for those families whose baby has died, or a subsequent pregnancy after a loss. Links to Bereaved Family Web Pages, other resources, and info about their newsletter and program.
Mending Broken Hearts is an easy to navigate site for bereaved families and caregivers.Includes a guest journal, poetry, articles to help you understand grief, and an angel baby photo album.
Michaela's Hope a web site dedicated in memory of our precious angel, Michaela Hope Bucher, and all babies with Anencephaly. A personal page telling the story of her birth, her journey home, and her death--a short life filled with love from her family.
Miscarriage & Infant Loss Memorial Book. An online version of St Pauls Tintagel Miscarriage Support Group's Memorial Book, which is kept at the Catholic Church Tintagel Cornwall. Anyone of any religion can put names of babies and families in the book.They hold an annual mass for all babies who die during pregnancy and up to 1 year old and their families. Any name put in the online book will also be registered in the printed book.
Miscarriage Association of the United Kingdom offers information (including several leaflets for sale), support services, information on upcoming events and links
Miscarriage by Dawn Banks George. Another very nice personal webpage.
Miscarriage Information Page gives basic information for anyone who has suffered a miscarriage.
Miscarriage (FAQ collection) includes over 84Mb of text on miscarriage and links.
Miscarriage Support and Information Resources. An attractive and rich source of information for those looking for assistance after a miscarriage.
Miscarriage Support Groups in NZ Tips for coping with miscarriage, contact information for Miscarriage Support Groups in New Zealand, links to other Internet resources and access to our online support forum soc.support.pregnancy.loss.
My Parents Are Survivors an online support group with total support from all over the world. This is in honor of the Parents who have lost a child. Includes great information for all members of the family, as well as a very large Remembrance Section.
M.I.S.S. (Mothers In Support and Sympathy) is a grass roots organization dedicated to supporting parents one to one after the death of an infant or young child. Referrals to peer contacts and ancillary organizations offered. List of Do's and Don'ts to help bereaved parents, and a listing of groups and resources in Arizona.
National SIDS and Infant Death Program Support Center is creating a nationwide network for private and public organizations, committed to ameliorating SIDS and reducing infant mortality.
National SIDS Resource Center (NSRC) provides information services and technical assistance on SIDS. If you have Acrobat Reader you can also download The Death of a Child, The Grief of the Parents: A Lifetime Journey.
National Stillbirth Society. Includes membership information, volunteer opportunities, legislative initiatives, state director info, and more.
Operation Angel: A Miscarriage and Child Loss Ministry includes ideas on how you can memorialize your baby, poetry, links, and info on how you can participate in their Memorial projects.
Our Hearts Will Go On is a web site established by a group of parents who have experienced miscarriage and stillbirth. Site includes stories and pictures of their babies, poetry, list of suggested reading materials, and links.
Our Tiny Stars In Heaven is a site dedicated to "How we say goodbye to the children we lost in miscarriage." The site is replicated in both English and Dutch.
Over the Rainbow Online, Pregnancy and Infant Loss Support Articles and information, interactive support groups, virtual memorial quilt, poetry and ideas for memorialization.
Pain, Heartache and Hope Website by the author of a book by the same title, where real men and women coping with miscarriage, infertility, stillbirth, and losing a child after birth share their stories. Site includes a Memorial Page and samples of stories from the book. Also a link to an email support group.
Parent Soup offers discussion boards as well as weekly live chats on almost every pregnancy and parenting issue you could imagine. Includes sites for abortion loss, miscarriage, and stillbirth among its huge offerings.
Parents of Multiples Forever a unique site providing support and resources for parents who experience the loss of one or some of their multiple birth children, either during pregnancy or anytime after birth, including childhood.
Perinatal Loss--Grief Watch offers a full line of products and gift items, from urns to albums, many of which are handcrafted to make them all the more special as remembrances.
Preemie Patterns. What a great site to link up with crocheted, knit and sewing patterns for preemie burial pouches and burial gowns. Use the patterns to create these much desired items for your local hospital as a support or as a memorial to your own angel.
Precious Children Remembered is a nonprofit organization to help bereaved parents. The site contains many examples of poetry relevant to parents journey through grief.
Pregnancy After Miscarriage News, links, chat, and support for those who are pregnant after having had a miscarriage.
Pregnancy After Perinatal Loss. The site for at least 2 research projecdts (one web based and one interview based) conducted by the Universtiy of Louisville Health Sciences Center School of Nursing.
Pregnancy and Infant Loss Network (an extension of the SIDS Network, Inc.) has a home page which includes guest book, information, and info on joining a Pregnancy and Infant Loss discussion group, and a SIDS discussion group.
Pregnancy Loss Resources. Includes important local resources for those living in the Bay Area California area, as well as a good information sheet on the kinds of things to think about in the hours, days and weeks that follow a loss.
RainbowMaker is a "Healing Center" founded after the loss of their first-born son Daniel Ethan. Includes helpful articles, angel pins, book reviews, and much more.
Rainbows Down Under - A Trisomy 18 & 13 Resource. A site from Australia which includes info, information on sharing info, links, a Trisomy Listserv, a Trisom 13, Trisomy 14, Trisomy 18 message boards, and much more.
Remembering Our Babies. Site devoted to promoting "Pregnancy and Infant Loss Remembrance Day". Tells you how you can get involved in making your country, your state, your community, your household involved in this important remembrance event. See if YOUR state has agreed to proclaim Remembrance Day... make sure you click to "sign the petition."
Rich Remembrances. The "Ten Toe Memento" is an engraving of the footprints of your child, and he has a special one for those whose child has died (click on "Child Memorial" on his page). The footprints are engraved in brass and are made from a photocopy of the footprints that a hospital often provides.
Roses in December. A small (as of now) yahoo group experience, an offical AOL chat in iVillage, who is welcoming all new members who have lost of child of any age. They also have a weekly chat in yahoo, and a weekly newsletter with poems, information, sharing, and special links.
Sahara and her friends in Heaven started as a personal site in remembrance of Sahara Kegley, who lived only two hours. But it has turned into much more with chat area, remembrance pages, and a list of people available by email for those who need to talk to someone.
SANDS (QLD) (Stillbirth And Neonatal Death Support). Site on the SANDS resources in Queensland Australia. SANDS is a self-help support group comprised of parents who have experienced the death of a baby through miscarriage, stillbirth, or shortly after birth. This site includes chat room, resources, members' stories, poem, and memorials, and much more.
SANDS (SO) (Stillbirth And Neonatal Death Support). Site on the SANDS resources in South Australia. SANDS is a self-help support group comprised of parents who have experienced the death of a baby through miscarriage, stillbirth, or shortly after birth. This site includes book reviews, several issues of their newsletter, events, info on the different reactions between men and women, and a checklist for friends and relatives.
SANDS (TAS) (Stillbirth And Neonatal Death Support). Site on the SANDS resources in Tasmania Australia. SANDS is a self-help support group comprised of parents who have experienced the death of a baby through miscarriage, stillbirth, or shortly after birth.
SANDS (VIC) (Stillbirth And Neonatal Death Support). Site on the SANDS resources in Victoria Australia. SANDS is a self-help support group comprised of parents who have experienced the death of a baby through miscarriage, stillbirth, or shortly after birth.
SANDS (W.A.) (Stillbirth And Neonatal Death Support) of Western Australia. Includes a lot of information, including a section for fathers, poetry, articles from their newsletter, and information on their support meetings.
SHARE Atlanta has developed a very nice site of resources, stories of sharing, a memorial garden, links and "Ways to Help Heal." Also includes info on Atlanta-area events of interest. Make sure you check out their section on "Descriptions of Medical Information"--it is EXCELLENT!
SHARE's National Office is online with information on the valuable services they offer caregivers and parents whose child has died. Site includes list of upcoming conferences, links, and resources (books, etc.) that Share offers.
Sharing Parents of Sacramento is an infant loss support group located in Northern California, affiliated with Share. Includes their newsletter online, as well as an events calendar and information on their services.
SIDS Families Support for grieving families who have lost a child to SIDS. Includes postcards, chat room, message board, poetry, advice and suggestions.
SIDS Network offers support to those who have been touched by SIDS, links, and a mailing list. The site has really expanded to include an entire series of FAQs as well as an extensive table of contents.
SIDS - The Smallest Angels Memorial Wall lists hundreds of babies who died from SIDS and invites other SIDS parents to do likewise.
Silent Grief. This is a website that is promoting 2 books and an audio cd... but most important there is a very large number of articles, stories, and a chat board with over 1000 members.
Stepping Stones offers Christian based support, encouragement and information for couples facing infertility or pregnancy loss.
Still Fathers. A support site for fathers who have experienced the loss of their children. It includes background information, a meeting schedule for those in the Seattle area, essays, and they have just started a new message board.
Storknet's Pregnancy/Infant Loss Cubby. A special site of information and support for those who have experienced infant loss. Currently moderated by grief author Maribeth Doerr.
Sudden Infant Death Syndrome (SIDS) Alliance! a national, non-profit, voluntary health organization dedicated to the support of SIDS families, education and research. See the latest research and news regarding SIDS, as well as events in the US focusing on the issue.
Tom Golden's Page on Crisis, Grief and Healing, a web site focusing on Men and Women's Differing Grieving Styles. An incredible list of links!
Tristan's Home Page is a personal page site in memory of Tristan Van Franklin, who lived for 10 days. Read his story, and they have also dedicated a space to sharing other people's story of loss. Also includes poetry which visitors to the page share.
TX Moms of Tiny Angels is a fairly new Texas organization providing education, emotional and educational support, providing "survival kits" to parents and suggestion packets to funeral homes. Site includes a "parents corner" with Recommended Reading, Websites, Support Groups, Creating Memories, Parent's Wish List, and info on Getting Through The Holidays.
Waiting With Love is for parents who choose to continue a pregnancy after learning their unborn baby will die before or shortly after birth and for parents who learn their newborn will die soon. Site includes parent letters, resources, and sample birth plans.
We will hold you in Heaven Support Group is an online "Yahoo groups" support group for anyone who has lost an angel due to SIDS/OID, miscarriage, eptopic pregnancy, still born, or early child death and is looking to give and recieve support....
Wintergreen Press is the website of well-known perinatal loss speaker and author Sherokee Isle. The site is still fairly new, but it promises to hold a lot of information in the future, including "action items" and "resources and how-tos."
Wisconsin Stillbirth Service Program is a large site which includes many links, information on stillbirth, an on-line newsletter and educational resources. Excellent.
Angel Babies - Forever Loved A site dedicated to the support and encouragement of bereaved parents - Miscarriage, Stillbirth, Neonatal Loss, and SIDS.
God's Littlest Angels Webring designed to link together those sites honoring the Littlest Angels in Heaven.
GRUPOS DE APOYO, PÉRDIDA Y DUELO
En Argentina
En España
En México
En el mundo
¿Qué ocurre antes y después del momento de la muerte? - American College of Physicians.
ASPECTOS SOCIALES, JURÍDICOS Y ÉTICOS DE LA MUERTE
www.bioeticaweb.com - Información sobre Bioética.
The World Federation of Right to Die Societies
Asociación Derecho a morir dignamente (DMD) - Asociación de referencia en el panorama nacional en lo que respecta a la reivindicación de la muerte voluntaria.
Muriendo con dignidad. Dying With Dignity, Toronto, Canada
Euthanasia Research & Guidance Organization(ERGO). Morir con Dignidad, Toronto, Canadá
Organización para la Investigación y Normativa de la Eutanasia Fast Access to V.E. Information
Acceso rápido a información sobre eutanasia voluntaria Growth House, Inc.
Sociedad Escocesa pro Eutanasia Voluntaria
Centro para la Muerte Natural - Voluntary Euthanasia FAQ
Sociedad pro Eutanasia Voluntaria de Victoria, Australia World Federation of Right to Die Societies
Federación de Sociedades pro Derecho a Morir World Federation of Right to Die Societies Newsletter
International Association of Bioethics - Reino Unido
Sociedad Andaluza de Investigación Bioética
European Network for Biomedical Ethics - Alemania
The Royal Society of Medicine - Reino Unido
Cambridge University Press - Reino Unido
Grupo de Investigación en Bioética de Galicia
National Catholic Bioethics Center - EEUU
Springer - Ethik in der Medizin. Alemania
Hastings Center - EEUU
The Human Life Foundation - EEUU
Imabe - Institut für medizinische Anthropologie und Bioethik - Austria
Journal of Clinical Ethics - EEUU
The American Society of Law, Medicine & Ethics - EEUU
Institute of Medical Ethics BMJ Publishing Group - Reino Unido
Swets & Zeitlinger publishers - EEUU
Kennedy Institute - EEUU
Centro di Bioetica - Un. Del Sacro Cuore Facoltá di Medicina e Chirurgia "Agostino Gemelli". Italia
Arnold Publishers - Reino Unido
Johns Hopkins University - EEUU
Kluwer Academic Publisher - Holanda
CONTRA LA EUTANASIA
International Association for Near-Death Studies - (IANDS) - Incluye información completa de todo lo relativo a experiencias cercanas a la muerte.
American Counseling Association
LOS CUIDADOS PALIATIVOS. CUIDADOS AL FINAL DE LA VIDA
HOSPICES
COLEGIOS, INSTITUTOS, UNIVERSIDADES
ASOCIACIONES CUIDADOS AL FINAL DE LA VIDA
DOLOR
HOSPICES:
Hospices on the Net in the UK and Ireland
The American hospice fundation
COLEGIOS, INSTITUTOS, UNIVERSIDADES:
Grant MacEwan College Palliative Care Certificate Program
The Institute of Palliative Care/Institut de soins palliatifs
University of Ottawa Institute of Palliative Care
International Hospice Institute
ASOCIACIONES:
Sociedad Española de Cuidados Paliativos - Centro de recursos dirigido a los profesionales que tratan de mejorar las condiciones de los enfermos en fase terminal.
The International Association for the Study of Pain
American Cancer Society: Information
Palliative Care Council of South Australia
Memorial Sloan-Kettering: Pain Control
Memorial Sloan-Kettering: Psycho-oncology
American Academy of Hospice and Palliative Medicine
WHO: Cancer and Palliative Care - IARC
Association of Cancer Online Resources
Department of Palliative Care and Policy - Kings College, London
ABC of Palliative Care - Recopilación de artículos básicos del "The British Medical Journal" sobre Cuidados Paliativos.
Cuidados Paliativos - Programa de Cuidados Paliativos de la Unidad de HADO del C.H.Xeral-Cíes de Vigo.
Asociación de Quebec de curas paliativas - (Association québécoise des soins palliatifs).
Grupo de Cuidados paliativos de Edmonton - (Edmonton Palliative Care Group).
National Hospice Organization - Dedicated to advancing the philosophy and practice of hospice care to meet the unique needs of each terminally ill person and his or her family and to serve as a voice and resource for its members.
National Hospice and Palliative Care Organization - Provides a search for hospice and palliative care, as well as statistics, resources and information. 1700 Diagonal Road, Suite 300. Alexandria, VA 22314, (703) 837-1500.
American Academy of Hospice and Palliative Medicine - Find board-certified hospice and palliative care physicians. 4700 W. Lake Ave. Glenview, IL 60025-1485. (847) 375-4712.
Center to Advance Palliative Care - Search the latest resources in palliative care available to hospitals and health care systems. Mount Sinai Hospital. One Gustave L. Levy Place, Box 1070. New York, NY 10029-6547.
Palliative Care Overview - Provides an overview of palliative care and pain treatment.
On Our Own Terms: Moyers on Dying in America - A four-part PBS series from a team of award-winning journalists led by Bill and Judith Davidson Moyers that reported on the end-of-life issues facing Americans. On Our Own Terms: Moyers on Dying revealed the stories of the dying, their families, and their caregivers and illustrated the growing struggle to balance medical intervention with comfort and humanity.
American Medical Association, Institute for Ethics EPEC (Education for Physicians on End of Life Care Project) - Offers information on end-of-life care education for professionals. 515 N. State St. Chicago, IL 60610. (312) 464-4979.
American Board of Hospice and Palliative Medicine - Provides information on palliative care and a directory of ABHPM certified physicians. 9200 Dale view Court. Silver Spring, MD 20901. (301) 439-8001.
Center to Advance Palliative Care - Search the latest resources in palliative care available to hospitals and health care systems. Mount Sinai Hospital. One Gustave L. Levy Place, Box 1070. New York, NY 10029-6547.
Palliative Care Corner - Offers resources for patients and providers. 13947 Silven Ave NE. Bainbridge Island, WA 98110 . (206) 855-8026.
European Journal of Palliative Care - Incluye los contenidos de la revista, archivos y composición de la misma, además de los abstracts de artículos en el área particular de los cuidados paliativos.
Hospice Hands - Este es un sitio importante de hospicio. Tiene una colección extensa de nexos del hospicio relacionando sitios y artículos para profesionales, disponibles en internet. Incluye preguntas y discusiones sobre hospice y un foro de respuestas abierta a todos. Incluye una página de información de hospicios de todo el mundo.
Palliative medicine - Lista de distribución por correo electrónico exclusiva de Cuidados Paliativos y cerrada a profesionales paliativistas. Dedicado al conocimiento clínico y en la práctica de los cuidados a pacientes con enfermedades terminales.
PDQ- Cancernet - Protocolos de investigación para la referencia de pacientes, médicos y organizaciones, del National Cancer Institute.Traducidos al castellano.
CUIDADOS AL FINAL DE LA VIDA:
Last Acts. Care & caring rear the end of life
American Medical Association Education for Physicians on End of Life Care
End of life care - The American Geriatrics Society.
George Washington University Center to Improve Care of the Dying
Oncopain - Forum on pain management open to health care professionals only.
Last Acts - A nation wide campaign dedicated to improving end-of-life care through the sharing of ideas and resources by professionals and individuals. Research latest news on legislative, educational and policy initiatives from local, state and national organizations. 1951 Kidwell Drive, Suite 205 Vienna, VA 22182 (703) 827-8771.
University of Toronto Joint Centre for Bioethics - (includes the full-text version of the centre's living will and links to other end-of-life Web sites).
Finding our way - Living with Dying in America.
Partnership for Caring: Americas Voices for the Dying - Download forms for advance directives tailored to your state; join a consumer advocacy group focused on improving end-of-life care. PFC Publications - Publications Office. 325 East Oliver Street. Baltimore, MD 21202. Hotline: 1-800-989-9455.
Promoting Excellence in End-of-Life Care - Research innovative programs that have received grants and technical support to change the face of dying in America. The University of Montana. 1000 East Beckwith Avenue Missoula, MT 59812 (406) 243-6601.
Americans for Better Care of the Dying - Track changes in public policy, as well as reforms in pain management and support for family caregivers. 4125 Albemarle Street, NW, Suite 210. Washington, DC 20016. (202) 895-9485.
Aging with Dignity - The Five Wishes Project. Offers advance directive forms that can be used by residents of 33 states. 1-888-5-WISHES.
AARP - AARP's End-of-Life page. Offers information on having end-of-life. conversations. 601 E St., NW Washington, DC 20049 1-800-424-3410.
Partnership for Caring: Americas Voices for the Dying - It’s All About Talking page. PFC Publications - Publications Office. 325 East Oliver Street Baltimore, MD 21202. Hotline: 1-800-989-9455 (Option 2).
DOLOR:
Pain.com - Web que da información en torno al dolor.
Sociedad Española e Internacional de Tanatología - SEIT - Asociación multidisciplinar española dedicada a promover una educación adecuada en todo lo que compete a la Tanatología, además de proveer información y recursos a sus miembros y público.
AlFinLibros.com - Alfinlibros surgió en el Servicio de Soporte al Duelo de Girona. Incluye bibliografía relativa al proceso de duelo y acompañamiento, para niños y adultos asi como otras lecturas relacionadas con la muerte y el morir, con la posibilidad de comprarlos.
¿Todos los caracoles se mueren siempre? - Como tratar la muerte en la educación infantil
Association of Death Education and Counselling - (ADEC) - Asociación multidisciplinar dedicada a promover una educación adecuada en la muerte, duelo y counseling, y cuidado a pacientes moribundos. Basado en teoría e investigación de calidad, ADEC provee información, soporte y recursos a miembros y público. Un espacio académico primariamente para profesionales que trabajan en el campo de la formación entorno a muerte, el morir y el counselling. Organiza jornadas académicas sobre el duelo y publica Death Studies, revista disponible en el Reino Unido a través de la Editorial Taylor & Francis. Ofrece a sus miembros información las publicaciones: Omega-Journal of Death and Dying and Death Studies. 638 Prospect Avenue. Hartford, CT 06105-4250; (860) 586-7503, Fax (860) 586-7550.
Dyingwell.org - Provee recursos informativos en torno a la muerte y los moribundos.
A Dying Person's Guide to Dying - American College of Physicians. American Society of Internal Medicine.
Recursos en español - Libros sobre pérdida y aborto.
Casa del Dhamma Medicina Cuerpo/Mente - Sitio dedicado a la medicina integrativa; a través de la medicina ayurveda, respiración consciente y técnicas de meditación y estudio budista desde el enfoque no religioso. El proceso de muerte se enfoca desde la perspectiva budista para aprender a morir concientemente y/o acompañar el proceso de muerte de otras personas de igual manera. Asimilar el duelo desde la comprensión de la muerte como proceso natural en el ciclo de vida humana.
Tanatología en el climaterio. Revistas Médicas Mexicanas. Nieto Editores.
Revista Colombiana de Psiquiatría. Asociación Colombiana de Psiquiatría.
Revista Brasileira de Medicina Legal.
IDADE ATIVA. Revista Electrônica da Terceira Idade.
Revista INDEX de Enfermería Digital.
Medline plus. Health information. Death & Dying
Journal of Pain and Symptom Management
National Cancer Institute Publications
Cancer Control Journal: Table of Contents
LMI - Progress in Palliative Care
New England Journal of Medicine On-line